Comfort

Sometimes comfort comes in the strangest forms. Yesterday on the fourth floor of Akron Childrens neorology department I found just that. It was like someone wrapped me in the warmest blanket on the coldest day. Quite honestly in a nuerology department you never know what type of patients you will encounter. There are some that the issues are obvious, some that aren't, and the in-betweens. Looking around the waiting room, it hit me. These parents and caregivers know exactly what I'm going through. Some have mountains to climb that make mine look like a small grassy knoll on the hillside. They are in that waiting room for a reason. Their child needs help. I'm embarrassed to say that as Alex gets older and restrictions get greater, I am angry. I think its natural that as a mother I want for him , what every child deserves, to be healthy. To be able to live a life without limits. Hearing the doctor say that he is "disabled" "handicaped" and will never be able to live an independent life is overwhelming. I'm not embarrassed, I hurt for him. Looking at the faces of the other parents in the waiting area, it felt a little like coming home. Somedays it feels like no one else understands what it feels like to be in the middle of eating dinner and seeing your child seize. Knowing that your child must take 15 pills a day to try and ward them off. Saying no to every activity that we take for granted. The list goes on and on. In that short 15 minutes on the fourth floor , I felt something I haven't felt in a very long time, comfort. For that, I am grateful.

where I've been

I haven't spent much time with my blog. This summer has been less then what I hoped for and time even shorter . So while I've been ignoring my blog a few things have been changing and happening. I turned 35 Sept 10, low and behold the girls from work whisked my away to a wonderful weekend at the beach. We visited Ocean City, Maryland. It was truly amazing. It was just what I needed . I know there aren't many seagull fans out there but my most memorable moments were spent hand feeding them potato ships and anchovies. I love those crazy feathered creatures!
We are adjusting into the new small house. If anyone has any storage ideas for closet-less bedrooms I'd love to hear them!! I can see I'm going to have to be creative!!
We also hosted the AU Offroad Labor day trail ride. That is something everyone should experience. Mud, Mud...and some occasional bugs stuck in your teeth. It was good for all of us to get out and drink up the sunshine, then finish the night off with some cornhole and a bonfire.
Andy has started football as you can see from my previous post. I have a good feeling about this for him. Alex and Aaron both started winter bowling leagues. Intresting note that Aarons team is all girls.... I think he planned that one!
We are also placing Alex in a tae kwon do class . It can help you to develop more self confidence. For example, the 5 Taekwondo tenets are:
Courtesy (Ye Ui)
Integrity (Yom Chi)
Perseverance (In Nae)
Self Control (Guk Gi)
Indomitable Spirit (Baekjul Boolkool)
Really excellent qualities to enforce during this time in his life.
Andy is also leaving for Alabama Oct 17. He is attending the space camp in huntsville.I think this will be an extraordinary oppurtunity for him and I'm excited!
More importantly then anything , Alex is going to his nuerologist Tuesday and we could sure use every postive thought/prayer/vibe that you all can send out.
Hopefully I will be mindfull of my blog and keep it updated :o)

Andy

This year has brought a new sport to Andy. This is his first year of playing football. I have mixed emotions about this sport but he has taken it and blossomed :o) He is becoming quite an amazing young man, I just can't figure out how he grew up so quickly!