If I could tell the world just one thing It would be that we're all OK And not to worry 'cause worry is wasteful And useless in times like these I won't be made useless I won't be idle with despair I will gather myself around my faith
Tuesday, March 23, 2010
more decisions
Today we had an appointment with Alex's neurologist. Over the years we have exhausted nearly every medication available and every treatment out there. For some reason I cannot possibly begin to understand, Alex has been resistant to the majority of these drugs. His vagus nerve stimulator has been helpful , but not the cure all. So today his neurologist was very blunt , he increased the strength of his stimulator and gave us 2 weeks to decide the next step. There are some other medications to try but with serious side effects such as liver failure and bone marrow complications. Wow, don't even want to think about those. If you look at the flip side of the coin, what is and will his quality of life be like when he is having seizures several times a day? His doctor suggested seeing another specialist out of Cleveland for a second opinion to make sure we have gone down every road possible. That's a lot to chew on. I don't understand how its possible that there isn't a single medication out there to zap these seizures. so again I'm just frustrated... I just want an answer ... a fix it.
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I'm sorry. I hate that it's been such a struggle just to make his life livable. Do you ever just get seriously pissed off and want to yell at God? Because, seriously...I've been there. I wish I had the fix :(
---Nix
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